Rome, June 22 (Adnkronos Salut) – A child with sickle cell anemia “must have a full and complete life, in addition to the disease and outside the hospital, which is as much as possible the same as other children: he must be able to go to school, play, play sports “. Thus, Paola Corti, hematologist pediatrician, head of the Red Globule clinic at Monza and the Brianza Foundation for the child and his mother at the Maria Letizia Verga Center at the San Gerardo Hospital in Monza, to ‘Aleati per la Salute’ (www. Alleatiperlasalute .it), the portal dedicated to medical-scientific information created by Novartis.
Monza Hospital offers a rehabilitation service and a ‘sports therapy’ service and is an expertise for patients with sickle cell anemia, a rare, chronic and complex disease. The cause is a genetic defect that causes the presence of an abnormal hemoglobin, hemoglobin S (sickle cell hemoglobin), which causes the red blood cells to assume the shape of the seal, which prevents the normal blood flow inside the blood vessels and causes painful crises (seal crises). , infection, thrombosis and multiorgan damage.
Also thanks to the sports therapy research project “we prevent the damage that the disease can cause to muscles and bones. Serious injuries – emphasizes Corti – which can hinder the normal psychomotor development and adequate growth in these children”. Precision training, adapted to individual characteristics, is offered to all children and young people who belong to the center. The hematologist arranges the first meeting with the sports doctor and the motor researcher. A sports medicine evaluation is then performed to plan a series of targeted exercises “focused on the prevention or treatment of pathological processes already underway, such as osteonecrosis (death of bone tissue due to deficiency or insufficient blood supply, ed.) On the limbs”, highlights the specialist.
Until a few years ago, Corti recalls, we only intervened with motor rehabilitation, “with physiotherapists and physiotherapists, after orthopedic interventions on osteonecrotic or osteomileitic problems (bone infection, ed.) Related to the disease. Physiotherapy in the hospital and then the real problem should be confronted, that is, how to re-enter the child for a longer period of time in the area, which guarantees adequate recovery, growth and harmonious development “. Since 2017, on the other hand, with the sports therapy research project, we have intervened in the prevention of complications – reports the article – in the ability to bring the patient, when necessary, to surgery under better conditions, and then follow him in resuming his ability to exercise and fully reintegrate into one’s sporting and social life: sport is by definition inclusive.
“Today, in the weeks of bone marrow transplantation, in her room – explains Corti – the little patient (child or teenager) who fits the clinical situation, walks, does muscle-strengthening exercises, plays, plays sports like football or golf, dances. Everything in safety and with results demonstrated through scientific publications and international congresses “.
The goal of sports therapy is to “get children to move in the face of complex clinical situations – adds Luca Pollastri, sports physician – This means looking for strategies to perform an activity that is compatible with the conditioned situation, to know the pathology, to have opportunity for a pediatric specialist support and to put together knowledge with the motor researcher to look for the compatible path and support for the patient.
The center’s strength is a team of specialists and experts who are able to intervene in a harmonious way in relation to the individual child’s specific needs.
“The relationship between hematologist pediatrician, sports physician and motor researchers is absolutely important because collaboration, in identifying exercises that children can do, is crucial to translating what is defined at a clinical level,” says Wiliam Zardo, motor researcher at the center. For parents, “seeing that investing in sports in a growth phase also provides – Pollastri concludes – important hope in the long term. Global leadership is much appreciated”.
The complete article is available at: https: //www.alleatiperlasalute.it/alla-scoperta-di/sport-therapy-e-riabilitazione-nei-pazienti-con-anemia-falciforme.